the experience of palliative patients and their families of a family meeting utilised as an instrument for spiritual and psychosocial care a qualitative study缓和病人和他们的家属的经验的家庭会议利用作为精神和心理保健的工具一个定性研究.pdf

Tan et al. BMC Palliative Care 2011, 10:7 /1472-684X/10/7 RESEARCH ARTICLE Open Access The experience of palliative patients and their families of a family meeting utilised as an instrument for spiritual and psychosocial care: A qualitative study 1* 2 3 4 Heather M Tan , Anne Wilson , Ian Olver and Christopher Barton Abstract Background: This study explores the experience of palliative patients and their family members of a family meeting model, utilised as an instrument for the provision of spiritual and psychosocial care. In doing so the study embraces a broad understanding of spirituality which may or may not include formal religious practice and a concept of psychosocial care that includes: social and emotional well-being, communication, self esteem, mental health and adaptation to illness. The meeting of spiritual and psychosocial needs is considered to be an important aspect of palliative care. Methods: This qualitative study, philosophically underpinned by hermeneutic phenomenology, investigates the participatory experience of palliative care patients and their significant family members of such a family meeting. People registered with two large metropolitan palliative care services, who met selection criteria, were referred by medical staff. Twelve of the 66 referred took part in family meetings which also included significant others invited by the patient. A total of 36 family members participated. The number of participants of individual family meetings ranged from two to eleven. After the family meeting every participant was invited to take part in an individual in-depth interview about their experience of the meeting. Forty seven interviews were conducted. These were audio recorded and transcribed. Results: Da