系统性红斑狼疮患者生活质量的评估与护理..doc

系统性红斑狼疮患者生活质量水平的相关性分析 敬雪明1 李芸2 罗万红1 敬剑英1 （1 川北医学院附属医院风湿血液科 四川南充 637000） （2 四川大学华西医院 四川 成都 610041） [摘要] 目的 通过对系统性红斑狼疮(Systemic lupus erythematosus，SLE)患者生活质量的评估，制定合理的护理措施以提高患者的生活质量。方法 选择120例SLE患者，以K．P．Leong生活质量评估问卷和SLE DAI评分对患者进行评估和分析。结果 SLE患者生活质量均有轻度至中度影响，SLE患者病程、疾病活动指数与生活质量评估总体得分无相关性(P0.05)。结论 适宜体能锻炼、降低SLE复发几率，加大风湿病专业人员培训力度和普及患者的疾病康复知识，以及加强SLE患者心理支持等6个环节，能够有效改善患者生活质量。 [关键词] 系统性红斑狼疮；生活质量；因素分析 Correlation analysis of the quality of life in patients with systemic lupus erythematosus Jing Xue-Ming1, LI Yun2, Luo Wan-Hong1, Jing Jian-Ying1 (1 Affiliated Hospital of North Sichuan Medical College, Nanchong 637000, China;) ( 2 West China Hospital, Sichuan University, Chengdu 610041, China) [Abstract] Objective To assess the quality of life in patients with systemic lupus erythematosus,and make reasonable nursing interventions to improve the quality of life. Methods 120 patients with systemic lupus erythematosus were enrolled. K.P.Lenog quality of life assessment questionnaires and SLE DAI score were used to evaluate and analyze the patients condition. Results The quality of life in SLE patients was affected mildly to moderately.There was no relation between the course of disease and the quality of life,neither the activity index of disease(P0.05). Conclusions Appropriate physical exercise, reducing the risk of SLE recurrence, strengthen the training of rheumatology professionals, popularizing the knowledge of rehabilitation of patients, strengthen the psychological support of patients and so on,can improve the quality of life in patients with SLE. [Key words] systemic lupus erythematosus; quality of life; factor analysis 系统性红斑狼疮(Systemic lupus erythematosus，SLE)是一种全身多系统受累的自身免疫性疾病，病程迁延多变，到目前为止无真正根治的方法，病情反复发作、漫长的治疗过程及长期服用类固醇药物所致的副作用，都会使患者心里产生应激反应，负性情绪增加，生活质量下降，从而影响患者疾病的康复和转归，成为不可预测的慢性自身免疫性疾病，严重影响患者的生活质量[1]。本研究采用K．P，Leong生活质量评估问卷，通过对SLE患者生活质量评估，针对存在的护理问题，制定护理措施，以提高患者的生活质量。 一、资料与方法 1．一般资料：根据1982年美国风湿